Why was a portion of the NHGRI budget set aside for ethical considerations?
Since the beginning of the Human Genome Project, it has been clear that science’s expanding knowledge of the genome would have a profound impact upon humanity. To maximize the potential for beneficial effects while minimizing the risk of detrimental effects, it was essential that research be conducted to investigate a wide range of issues related to the acquisition and use of genomic information. Five percent of the annual budget of the NHGRI is dedicated to examining ethical, legal and social implications (ELSI) related to human genome research, incorporating specific recommendations into the activities of NHGRI and providing guidance to policymakers and the public. The ELSI program at NHGRI, which is considered unprecedented in biomedical science in terms of scope and level of priority, provides an effective basis from which to assess the implications of genome research, and has resulted in several notable improvements to the HGP. An example is the decision to sequence the DNA of sev
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