Why do we go to CdLS Conferences?
Professionals attend both as presenters and audience members. Doctors, therapists, teachers and counsellors have found the CdLS Associations more formal gatherings to be a unique source of information. CdLS is so rare, that often Doctors only ever see one patient in their professional lives, if that. At meetings they are able to examine many patients with the Syndrome in one place. This is often helpful for medical research projects, as well as for CdLS children yet to be born. Professionals are then more able to treat patients in the most effective manner. Early diagnosis of medical complications often save lives. Conference is also the forum for revealing the results of research projects, details of surgeries which have been of benefit to children with CdLS, and therapy and teaching methods which have been found to work best. Parents attend for many reasons. As many of our families are geographically isolated, they do not have access to the services of their city cousins. Conference
