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Why are my blood Phenylalanine (Phe) levels higher than they were a couple of years ago before I hit my teens?

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Why are my blood Phenylalanine (Phe) levels higher than they were a couple of years ago before I hit my teens?

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Kids achieve better blood Phe control than teenagers, largely due to the support they receive from their parents. Eighty percent of young adults have blood Phe levels higher than their target level compared with twenty-five percent of children5. If you’re struggling, see your PKU specialist to discuss treatment support. You may be able to benefit from a synthetic form of BH4 known as Sapropterin Dihydrochloride, which may help you maintain blood Phe at a low level and within a target range.

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