Who is treating the pseudotumor cerebri patient?
“I’m terribly frustrated… and have been so for years! I go to my neurosurgeon regarding surgery options. I go to my neuro-ophthalmologist to have my eyes and vision checked out. They address the major components of this disease. But what about the daily symptoms that need medical care? “Who manages my daily pain, my fatigue, tinnitus, dizziness, back pain, loss of coordination, my medication, and (let’s not forget) my depression and frustration over having this disease in the first place! My specialists are not the answer. “Now don’t get me wrong; I love my doctor-specialists, and because of their talents, I believe I will see my children grow up. However, they are equipped to deal with pseudotumor cerebri only in their area of expertise not the entire package. Not the person living with PTC on a chronic, daily basis. “In the past years I have felt like a hot potato. A doctor treats one symptom and then passes me on to the next doctor, who treats and passes, treats and passes. Usual
Related Questions
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- What’s the difference between pseudotumor cerebri, idiopathic intracranial hypertension and secondary intracranial hypertension?
- Who is treating the pseudotumor cerebri patient?