Who has Prader-Willi syndrome (PWS)?
Anyone can be born with Prader-Willi syndrome (PWS). Some individuals may have acquired PWS due to brain trauma. What is Prader-Willi syndrome? Prader-Willi syndrome is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior. It is typically characterized by low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and the hallmark characteristics – involuntary and uncontrollable chronic feelings of hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity. Those who have Prader-Willi syndrome need intervention and strict external controls, including padlocking access to food, to maintain normal weight and to help save their lives. When does Prader-Willi syndrome occur? It is estimated that one in 12,000 to 15,000 people has PWS. Although considered a “rare disorder, PWS is one of the most common conditions seen in genetics clinics and is the most common geneti
