Who else is doing ALS research?
While the film So Much So Fast profiles the ALS Therapy Development Institute, founded by Jamie Heywood, there are a number of other research and advocacy organizations: The Muscular Dystrophy Association has a division devoted to ALS research and its Web site has a list of clinical trials currently in production. Though the International Alliance of ALS/MND Associations does not conduct research itself, it maintains a list of international organizations who do. In addition to patient and caregiver education, the ALSA Web site is a good place to find the latest research news. Project ALS was founded by theater producer Jenifer Estess, her friends and family, after she was diagnosed with ALS at age 35. Eighty percent of the funds raised by Project ALS are directed to research and education, with four main target areas: genetics, drug discovery, stem cell research and disease pathways (the study of how ALS progresses). The Day Laboratory for Neuromuscular Research, run by Dr. Robert Brow
