Where can I find support from other parents of children with Pataus Syndrome?
There are several sites with very good information and support about Patau’s Syndrome: • S.O.F.T. Good resource for information about and for caring for a child with Trisomy 13. • Common Problems of Babies with Trisomy 18 or 13 Good information gathered from experienced parents about some of the issues you may face and how to address them. • Rainbows Down Under Extensive Trisomy 13 information and experiences of families. • Trisomy Online.Org Trisomy Resources Although this is a very difficult situation, there is a lot of support available – you are not alone. I have also included a section of Grief Resources to help you grieve your child. There is also a section for friends called Helping a Grieving Friend. This is a strange journey; in many ways the grieving starts at the diagnosis, even before we lose our children. I hope that this site can be of help to you as you travel this difficult path.
