Where can families affected by Down syndrome get additional information?
There are organizations across the country that provide information and support for families with children affected by Down syndrome. Two are: National Down Syndrome Society666 BroadwayNew York, NY 10012(800) 221-4602 or (212) 460-9330 National Down Syndrome Congress 1370 Center Drive, Suite 102Atlanta, GA 30338800 (232)-NDSC or (770) 604-9500 What health problems might a child or adult with Down syndrome have? The outlook for individuals with Down syndrome is far brighter than it once was. Most of the health problems associated with Down syndrome can be treated, and life expectancy is now about 55 years (2). Individuals with Down syndrome are more likely than unaffected individuals to have one or more of the following health conditions: • Heart defects. Almost half of babies with Down syndrome have heart defects (3). Some defects are minor and may be treated with medications, while others require surgery. All babies with Down syndrome should be examined by a pediatric cardiologist, a
