Whats the treatment for tuberous sclerosis?
There is no specific treatment for tuberous sclerosis. A multidisciplinary team approach is useful to address the many organ systems that may be affected. Periodic monitoring is necessary, ranging from 1-3 years, depending on the internal tumors and their manifestations. Treatment plans should be determined on an individual basis. Treatment is tailored to the symptoms. Seizure medications are required for the control of seizures (which is often difficult). Special schooling or care is determined by the severity of mental retardation. Adenoma sebaceum (small growths) on the face may be removed by laser treatment. These lesions tend to recur and repeat treatments will be necessary. Heart tumor called rhabdomyoma may disappear after puberty so it is usually not necessary to remove it by surgery. Regular ultrasound of kidneys is important screening for adults to make sure tumors do not grow.
