Whats the most important thing a family and support network can do for someone with Parkinsons?
Bind together so there’s a commonality of spirit and effort, and that results in diffusion of the problem. One of my daughters is in Boston and one in San Francisco, but they speak to me every day, and that has been going on for years since their mother died. What do you think is the most difficult thing for caregivers and family when a person is diagnosed with Parkinson’s? To understand on a day-to-day basis the complexities of the problem and to realize that when something happens, it’s OK to say it’s the disease. You seem to feel a strong responsibility to your family, to reassure them and “stay in the game.” Isn’t that exhausting for you? My therapist has said to me many times, “You expend an incredible amount of energy just to keep your head above water.” It’s quite incredible the amount of energy necessary just to go along, and that has ramifications in my life also. I spend my entire life in a state of vigilance now. I want to make sure my grandbabies know who I am, so I make tr
