What type of data are in NDAR and will the data be expanded over time?
NDAR is set up to accept standard phenotypic data, images and genomic/pedigree data related to human subjects (see FAQ 27 for more information on the imaging and genomic formats supported by NDAR). In 2009, NDAR is approved to develop a data dictionary system that will allow investigators to help define additional ASD data elements. Having a data dictionary, enhanced by both external investigators and NIH staff, will enable NDAR to recognize and accept most any type of structured research data.