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What resources are available to families affected by retinoblastoma?

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What resources are available to families affected by retinoblastoma?

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The impact of the news and the treatment of the disease affects the entire family. There is much information from many professionals (Eye MD, Ocularist, Oncologist, etc) and this can be a challenging endeavor. Psychologists, social workers, orthoptists, geneticists and nurses may also aid in the process. Parent contact and support groups are often good resources.

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