What measures does the ONSP take to ensure that patient information is secure?
The ONSP has implemented multiple safeguards to ensure the security and accuracy of the personal health information collected as part of the newborn screening process. All personal health information is stored within the babys record in our electronic information management system that is specifically designed for Newborn Screening Programs. Protected by network firewalls and login/password access, the system is accessible only to ONSP staff and it allows privileges to be set for users based on their role in the program, thereby limiting access to information on a need to know basis. The system also provides tools for ensuring accuracy, identifying errors, auditing, and specimen tracking, designed to meet privacy requirements and laboratory standards. The program is located at the Childrens Hospital of Eastern Ontario and is therefore supported by the robust IT infrastructure in place and well defined policies and procedures around access control and appropriate use of information. Our
