What kind of data does AGRE collect and distribute?
AGRE collects the Autism Diagnostic Interview Revised (ADI-R) on each of the reported affected individuals. In addition, affected individuals are assessed with the Autism Diagnostic Observational Scales (ADOS). Over time, we aim to collect a set of cognitive exams including the Raven Progressive Matrices, the Vineland and the PPVT. Many families are also scheduled for physician visits during which time we collect medical histories on the parents, affected, and unaffected children. In addition, Physical and Neurological Exam data is also collected during the physician visit. While AGRE aims to eventually collect all data for all subjects in the study, pedigrees are distributed before the entire process of data collection has been completed. Therefore, it is important to choose pedigrees for your study based on the specific criteria of your study as well as the availability of the necessary data.
AGRE collects the Autism Diagnostic Interview Revised (ADI-R) on each of the reported affected individuals. In addition, affected individuals are assessed with the Autism Diagnostic Observational Scales (ADOS). Over time, we aim to collect a set of cognitive exams including the Raven Progressive Matrices, the Vineland and the PPVT. Many families are also scheduled for physician visits during which time we collect medical histories on the parents, affected, and unaffected children. In addition, Physical and Neurological Exam data is also collected during the physician visit. While AGRE aims to eventually collect all data for all subjects in the study, pedigrees are distributed before the entire process of data collection has been completed. Therefore, it is important to choose pedigrees for your study based on the specific criteria of your study as well as the availability of the necessary data.
