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What is the US policy in the field of rare diseases ?

April 26, 2017diseases field genetic disease orphan drugs policy rare rare disease rare diseases

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What is the US policy in the field of rare diseases ?

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The Office of Rare Diseases (ORD) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH). On November 6, 2002, the President established the Office in statute (Public Law 107-280, the Rare Diseases Act of 2002). More information on the activities of this office can be found on the following website: rarediseases.info.nih.