What is the significance of 100days?
I ask this of the Dr s and they said that for me with Myelofibrosis it has less significance then other s that had terminal diseases and went through bone marrow transplant. It basically means that patients can come off the “low microbial diet” that they have been on for the last 100 days. and reduce confinement to make small trips out of their homes for short duration s under appropriate circumstances. No crowds, off peak times, etc. The low microbial diet is ensuring that your food is well cooked and staying away from certain foods. A few of the foods I am to stay away from are seafood, Parmesan cheese, grapefruit juice, almonds (brutal no chocolate covered almonds for me over Christmas). Soooo, here it comes ..as I am getting use to hearing, they would prefer if I remained on this diet and confined until a future date to be determined by my progress. They went on to explain that with Myelofibrosis being so unknown, not understood and very aggressive they would prefer not to take any
