What is the regulatory framework governing population genomics in Canada?
• The Guidelines for Health Research Involving Aboriginal Peoples (2007) are set by the Canadian Institutes of Health Research (CIHR) and provide guidelines for populational research carried out within Aboriginal communities. • The Tri-Council Policy Statement (CIHR, SSHRC, NSERC, 1998) does not specifically address population genomics. However, it underlines that “in the case of population studies, it is possible to identify a given group by its family origin, its geographic location, its ethnic origin, etc. and the act of revealing or exposing the results of these studies to the public runs the risk of stigmatizing others in this group.” • The Tri-Council Policy Statement also foresees certain particularities for researchers who are proposing projects that require the use of genetic databases.
• The Guidelines for Health Research Involving Aboriginal Peoples (2007) are set by the Canadian Institutes of Health Research (CIHR) and provide guidelines for populational research carried out within Aboriginal communities. • The Tri-Council Policy Statement (CIHR, SSHRC, NSERC, 1998, 2000, 2005) does not specifically address population genomics. However, it underlines that “in the case of population studies, it is possible to identify a given group by its family origin, its geographic location, its ethnic origin, etc. and the act of revealing or exposing the results of these studies to the public runs the risk of stigmatizing others in this group.” • The Tri-Council Policy Statement also foresees certain particularities for researchers who are proposing projects that require the use of genetic databases. These researchers have to prove to a research ethics committee and to participants that they took into consideration ethical questions related to their project, such as those relate
