What is the regulatory framework governing genetic screening in Quebec?
In Quebec, there are no legal rules specifically addressing genetic screening. However, general legal rules can apply to genetic screening. • For example, the Civil Code of Quebec contains general provisions dealing with personal integrity that can apply to genetic screening. • Various organizations have created recommendations that address genetic screening. For example, the ‘agence d’évaluation des technologies et des modes d’interventions en santé’ (Aetmis) created a report entitled Tandem Mass Spectrometry and Neonatal Blood Screening in Quebec. This report recommends, among other things, that a clear policy concerning the information communicated to parents be created and that consent be established. It also states that sample conservation policies (duration, justification, and conditions for conservation) and policies addressing the permitted uses of secondary information be revised.
In Quebec, there are no legal rules specifically addressing genetic screening. However, general legal rules can apply to genetic screening. • For example, the Civil Code of Quebec contains general provisions dealing with personal integrity that can apply to genetic screening. • Various organizations have created recommendations that address genetic screening. For example, the ‘agence d’évaluation des technologies et des modes d’interventions en santé’ (Aetmis) created a report entitled Tandem Mass Spectrometry and Neonatal Blood Screening in Quebec. This report recommends, among other things, that a clear policy concerning the information communicated to parents be created and that consent be established. It also states that sample conservation policies (duration, justification, and conditions for conservation) and policies addressing the permitted uses of secondary information be revised. • The ‘Institut national de santé publique du Québec’ created a ‘Rapport d’évaluation du programm
