What is the purpose of the Communication and Council Recommendation on rare diseases?
The Communication and Council Recommendation aim to provide a coordinated Community approach for ensuring effective and efficient recognition, prevention, diagnosis, treatment, care and research in the field of rare diseases in Europe. In order to achieve this, it is necessary to: • Improve the recognition and visibility on rare diseases by developing proper identification and coding of rare diseases, many of which currently go unrecognised leading to inappropriate treatment for individuals and lack of appropriate resources overall. • Support policies on rare diseases in the Member States to ensure universal access and availability of prevention methods, diagnosis, treatment and rehabilitation for people with rare diseases. The policies will help to raise awareness in the general public, the health workforce. social services, decision-makers, and media. • Develop European cooperation, coordination and regulation for rare diseases, in particular to ensure action in areas such as researc
