What is the National Organization for Rare Disorders (NORD)?
NORD is a non-profit organization founded in 1983 by leaders of patient organizations who were advocating for the Orphan Drug Act. It is a federation of individuals and organizations dedicated to improving the lives of people affected by rare diseases through programs of education, research, advocacy and patient services. NORD’s founder and president for its first 25 years, Abbey Meyers, is widely considered the leading consumer advocate responsible for enactment of the Orphan Drug Act. NORD’s offices are in Connecticut and Washington, DC.
