What is the Juvenile Scleroderma Network?
We are a unique non-profit membership organization with IRS 501(C)(3) status, that is put together by board members, made up of volunteer parents, health professionals, and people interested in juvenile scleroderma. Founded in 1999, the Juvenile Scleroderma Network is the only national voluntary organization that works for all children affected by juvenile scleroderma and their families. Volunteers nationwide help to support community education programs and fund raising activities. The Juvenile Scleroderma Network relies on public contributions to provide juvenile scleroderma programs. The JSDN is not affiliated or receives funds from any scleroderma or related diseases organization. Children who have juvenile scleroderma may experience confusion about their illness, anger about change in appearance and fear of the unknown. For children to deal successfully with the impact of juvenile scleroderma, it is most important for them to have a supportive and understanding familial unit. For p
