What is the Indiana Birth Defects and Problems Registry?
The Indiana Birth Defects and Problems Registry (IBDPR) is a data system that collects information about children in Indiana to promote fetal health, prevent birth defects, and improve the quality of life of Indiana residents. The earlier some birth defects are found, the better chance these babies have of living longer and healthier lives. What does the IBDPR do? The IBDPR collects information on birth defects and birth problems for all children in Indiana from birth to 3 years old (5 years old for autism and fetal alcohol syndrome). This information is used to determine the number of children born with birth defects, to plan intervention and prevention strategies, and to offer resources to families. State law requires that doctors, hospitals, and other health care providers send a report to the IBDPR at the Indiana State Department of Health when a child is born with a birth defect. Click here to view Indiana’s IBDPR Rule (410 IAC 21-3). Click here to read the most recent Progress Re