What is the GUID and why is it so important to NDAR?
The NDAR GUID, or “Global Unique Identifier”, allows NDAR to associate a single research participant’s genetic, imaging, clinical assessment and other information even if the data were collected at different locations or through different studies. A GUID is a computer-generated alphanumeric code that is unique to each research participant. The process of assigning a GUID keeps direct identifiers from ever being transmitted or stored in the NIH NDAR database. Use of the GUID minimizes risks to study participants because it keeps one individual’s information separate from that of another person without NDAR having to contain names, addresses, or other identifying information. The unique code also allows NDAR to link together all submitted information on a single participant, giving researchers access to information that may have been collected elsewhere. Important: When collecting a research subject’s personally identifiable information (PII) at a research site, be sure to ask for the Fu
