What is the effect of the Health Insurance Portability and Accountability Act (HIPAA) on the NEI-AREDS Repository?
The Privacy Rule is a federal regulation under the Health Insurance Portability and Accountability Act (HIPAA) of 1996 that governs the protection of individually identifiable health information. The Repository does not accept or store any personally identifying information on samples, and therefore, investigators ordering samples are HIPAA compliant during repository usage. Note that Coriell and the NEI-AREDS Repository are not covered entities, and therefore, are not subject to HIPAA regulations.
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