What is the American Hemochromatosis Society (AHS) and what is its mission?
The American Hemochromatosis Society (AHS) is the leading non profit organization for information on genetic testing for iron overload/hereditary hemochromatosis, and information and support for pediatric hereditary hemochromatosis. AHS was founded on March 30, 1998 by Sandra Thomas, a carrier of the HH mutation and whose mother, Josephine Bogie Thomas, was a victim of HH and was diagnosed in 1983 and died from complications of the disease on May 13, 1999. AHS originally was based in Delray Beach, Florida, and is now based in Lake Mary, near Orlando, Florida. It is a 501(c)3 non-profit organization whose mission is to ban genetic discrimination, promote genetic testing for HH of the American population, and emphasize a focus on pediatric hereditary hemochromatosis and neonatal hemochromatosis. More than 1.5 million Americans who have iron overload/hereditary hemochromatosis and another 32 million Americans who are “silent carriers” of the single mutation, will need to be served with in
