What is required in terms of accompanying clinical data?
Each disorder has a minimum data set which must be included as a part of sample submission. This includes patient demographics (age, diagnosis, family history, gender) and diagnostic details (which differ for each disorder collected, designed to be simple but useful). Forms for collection of these data are available online or in hard copy (email ninds@coriell.org) for copies. If your project has an existing database and you would like to submit data to Coriell directly from that, this might be possible and should be coordinated with Scott Megill (smegill@coriell.org).
