What is it Like to Live With an NTD?
Both prevention and treatment of NTDs – spina bifida and anencephaly – are important. NTDs impact not only the life of a child and those of his or her family, but the community as well. As a child with spina bifida grows older, he or she faces unique economic, educational, medical, health and emotional issues. Paralysis of the legs and bowel and bladder management problems are common for those with spina bifida. These problems may affect a person’s health, self-esteem, personal interactions and work and recreational opportunities. Despite physical and mental challenges, many people with spina bifida live independently. Today, mental retardation caused by hydrocephalus, a complication of spina bifida, is uncommon because of early medical and surgical treatment. However, learning disabilities are common. Although medical care has greatly improved the survival rates and quality of life of children with spina bifida, the children and families affected live with varying degrees of physical
