What is an appropriate data sharing plan for membership in the NGC?
A13. An appropriate data sharing plan includes all elements of the NGC Model Data Sharing Plan. * NIDA GENETICS CONSORTIUM MODEL DATA SHARING PLAN • Whole blood samples from each subject will be sent to the NIDA Center for Genetic Studies (NCGS), which will extract DNA and plasma and cryopreserve the lymphocytes. If the lymphocyte cell count is low, the NCGS will attempt to create a cell line immediately. • The NCGS will distribute DNA and plasma only to the principal investigator until the materials are available for sharing. If the principal investigator pays for and receives a copy of a cell line, they may prepare and distribute DNA from these cell lines for himself/herself and his/her collaborators. However, resolving any discrepancies associated with DNA samples that were not prepared by the NCGS will be the responsibility of the principal investigator and at the principal investigator’s expense. • The data provided for each subject will be: • Subject ID # • Family ID # • Site ID
