What information does the Alaska Birth Defects Registry collect?
To be included in the ABDR, a child must have been born to a woman who was a resident of the State of Alaska at the time of the child s birth, and be diagnosed as having one of the eligible conditions. Children meeting these criteria are identified from computer linkage of information from vital statistics (birth and death certificates), hospitals, physicians, and other health care providers. The ABDR has established codes 740-759 as Reportable ICD-9 codes. In addition, the ABDR has chosen to be more inclusive than other registries by including neurofibromatosis, congenital hypothyroidism, adrenogenital disorders, disorders of metabolism and immune mechanism, hereditary hemolytic anemias, aplastic anemia, cerebral degenerations, spinocerebellar disease, anterior horn cell disease, infantile cerebral palsy, muscular dystrophies, pigmentary retinal dystrophy, and conditions such as Fetal Alcohol Syndrome as reportable conditions (ICD-9 codes 237.7, 243, 255.2, 277, 279,282, 284.0, 331, 3
