What federal agencies are involved in newborn screening-related activities?
CDC’s Division of Laboratory Sciences operates the Newborn Screening Quality Assurance Program (NSQAP) and the Newborn Screening Translation Research Initiative (NSTRI) (in collaboration with the CDC Foundation). CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) provides information on newborn screening and related conditions. The Health Resources Services Administration (HRSA), Maternal and Child Health Bureau (MCHB) supports newborn screening and increases professional and public knowledge of how genetic diseases affect health through numerous programs such as the Genetics and Newborn Screening Regional Collaborative Groups (RCs) and the National Newborn Screening and Genetics Resource Center (NNSGRC) among others. MCHB also houses the Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. The National Human Genome Research Institute (NHGRI) and the National Institute of Child Health and Human Development (NICHD) at the
