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What does the HIPAA Privacy Rule say about a research participant’s right of access to research records or results?

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What does the HIPAA Privacy Rule say about a research participant’s right of access to research records or results?

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With few exceptions, the Privacy Rule gives patients the right to inspect and obtain a copy of health information about themselves that is maintained by a covered entity or its business associate in a “designated record set.” A designated record set is basically a group of records which a covered entity uses to make decisions about individuals, and includes a health care provider’s medical records and billing records, and a health plan’s enrollment, payment, claims adjudication, and case or medical management record systems.

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