What does the Haemophilia Alliance do?
It brings together the various healthcare workers involved in haemophilia care in the UK, and that would include physiotherapists, laboratory workers, clinical scientists, social workers, nurses, doctors and of course, members of the Haemophilia Society. I chair the meetings, which are held six monthly, alternating with the other co-chairman who is from the Haemophilia Society. The main function of the society is to bridge the gap between health care workers and patients addressing a whole range of the areas surrounding patient care. A major achievement of the Alliance has been the production of a national service specification for haemophilia and other inherited bleeding disorders, the primary function of which is to inform commissioning groups about haemophilia and to direct them on the organisation and purchasing of health care for haemophilia. The first version of the specification was published in 2001 and it was updated in 2006. There is a spin-off from the Alliance, which is the
