What does the future hold for people with SMS?
With help, people with SMS can expect to accomplish many of things their “typical” peers do—attend school, achieve in their outside areas of interest, be successfully employed, even move away from their family home. They do, however, need a significant amount of support from their families and from school, work, and residential service providers to achieve these goals. Early intervention can play a significant role in an individual’s prognosis. New medications, including psychotropic drugs, are already improving the quality of life for some people with SMS. Ongoing research offers the hope of new discoveries that will enable people affected by this rare condition to live more independent lives.