What does ALS feel like?
Not being able to move a finger feels sort of like not being able to wiggle your ears. It doesn’t really feel like the finger is immobilized, it’s just not going anywhere. When I first had trouble walking, it felt like wearing a leaden pancho. Now I am confined to a wheelchair all day and it feels like G forces are pressing my upper body backward into the chair. My hands and feet are often very cold — even in the summer.
