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What do people with MS want and expect from health-care services?

April 26, 2017biotechnology center expect MS National people PubMed Services

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What do people with MS want and expect from health-care services?

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OBJECTIVE: To determine the health-care preferences of people with Multiple Sclerosis (MS). DESIGN: Cross-sectional survey using a postal questionnaire comprising standardized measures of health related quality of life (SF-36) and of depression (BDI) and original questions about issues linked to health-care, prioritized by people with MS during an earlier qualitative phase. PARTICIPANTS: A stratified sample of 318 people with MS in Scotland and England. RESULTS: Questionnaires were sent to 471 people with multiple sclerosis. The 318 respondents (68%) reported a wide variation in quality of life, but on average scored significantly lower than normative values in all dimensions of the SF-36. The most commonly used home treatment during the previous year was evening primrose oil, taken by almost half of the sample (47%). Use of cannabis was acknowledged by 8%. There was evidence that many preferences concerning health services were not satisfied. For instance lack of advice about at least