What do parents need to do if their child is diagnosed with hereditary angioedema (HAE)?
In order to help an affected child deal with swelling attacks as effectively as possible, parents should adopt a pro-active approach to their child’s illness. This includes: • The child’s caregivers and teachers must be informed of the disease. • Telephone numbers and other contact information of involved parties (parents, relatives, physician, HAE center or clinic) must be available for emergency reference to everyone working with the child. • Teachers and chaperones accompanying the child on outings, field trips and other activities should be provided with copies of the child’s emergency identification card, emergency medications and, when necessary, with a letter from the physician or clinic. • In the case of longer trips, consider finding and contacting a local hospital or physician to discuss arrangements in an emergency.
