What “direct delivery of services” does the HBDP provide to affected babies and their families?
The major role of the HBDP is one of birth defect case identification, collection of important demographic and diagnostic information, dissemination of this de-identified data in a variety of formats, and participation in data research projects. The mission of the HBDP and its small staff size do not allow it to provide direct delivery of service to families, except for referral to other agencies whose role it is to provide that direct outreach.
