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What data should be sent to the Data Repository?

April 26, 2017Data Repository sent

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What data should be sent to the Data Repository?

1 Answer

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In general, the repository should receive all the data being collected by the Data Coordinating Center, provided that the subject has consented to having his/her data included in the repository. However, no personal identifiers should be sent to the repository, and data may need to be transformed or anonymized in some way to ensure that no personal identifiers are reposited.