What assurances are in place to protect participant privacy?
The NEI-AREDS Genetic Repository is a collection of genetic material submitted by participants in the Age-Related Eye Disease Study (AREDS) which was sponsored by the National Eye Institute (NEI). The Repository stores DNA for use by investigators conducting genetics research into the causes of eye disease. Identifiable information is not used or retained by Coriell Repositories for any samples distributed. Some participant identification, such as age, gender, and race, will be made available to the Repository and researchers; however, these data will not be traceable to any individuals and will be HIPAA compliant.
