What are the key international policy positions addressing confidentiality and genetic information?
• The World Medical Association Statement on Genetics and Medicine (WMA, 2005) states that the results of genetic testing must be kept confidential and that physicians should support laws offering protection from genetic discrimination. • Resolution 2004/9: Genetic Privacy and Non-Discrimination (UNESCO, 2004) and Resolution 2001/39: Genetic Privacy and Non-Discrimination (UNESCO, 2001) affirm that information obtained from genetic tests should be held confidential and urges States to protect the privacy of those who undergo genetic testing. • The International Declaration on Human Genetic Data (IBC UNESCO, 2003) provides that States should protect the privacy of individuals and the confidentiality of human genetic data. • The Universal Declaration on the Human Genome and Human Rights (IBC UNESCO, 1997) also holds that genetic information must be kept confidential.
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