Under what conditions are samples distributed?
In order to receive samples or data, the institution will have to sign a Usage Agreement with NIDDK (https://www.niddkrepository.org/niddkdocs/forms/Draft%20Data%20Use%20Agreement%20for%20Repository.doc). The agreement will include certification the project has IRB approval, that the investigators will only conduct the research consistent with the subjects’ informed consent, and that researchers will not attempt to identify any individuals. In addition, the Agreement will forbid any redistribution of the materials by the investigator or institution.
