SSI help with epidermolysis Bullosa?
My nephew has E.B. He just graduated and is trying to live out on his own. Trying to hold down a full time job has really highlighted the obstacles this disability puts in his path. Over the years, his parents provided no instruction, training or assistance of anykind for his E.B. and he is completely unprepared to have an independent life. I want to help him get all of the information, tools.skills and assistance he needs to be independent and have a good life.