Several questions in NEAF ask if the data I’m collecting is identified, potentially identifiable or non-identifiable. How do I tell the difference?
Non-identifiable data: is that data which is completely anonymous. For example, a questionnaire returned by mail with no identifiers included (eg: name, address, date of birth etc), or a data set obtained from a third party which has been coded, where the data is supplied without the key to the code or any other information that could allow the data to be re-identified. Potentially identifiable data: is data that has been coded and is stored separately from both the key to the code and any remaining identified data (eg: signed consent forms). This is data which can be re-identified using the key to the code. Where data will be in the form of human tissue samples, this data is potentially identifiable data or re-identifiable data (due the advances in genetic knowledge, data linkage and the proliferation of tissue banks of identifiable material). (See NHMRC National Statement on Ethical Conduct in Human Research Chapter 3.2, p.29). Identified data: is data that is stored with identifiers
Related Questions
- Can we use Royal Mail/normal post to send regular and frequent patient identifiable data such as, referral letters, patient appointments and test results?
- Several questions in NEAF ask if the data I’m collecting is identified, potentially identifiable or non-identifiable. How do I tell the difference?
- Does RevTrax sell personally identifiable data?
