One of the resident neurosurgeons said that “we were just delaying the inevitable by having the shunt put in, that respiratory failure would most likely be the cause of her death so we took CPR classes. Has anyone experienced any type of respiratory problems that required any cpr?
Yes, many of the parents I asked, know CPR and have an ambu bag or several on hand at all times and have had to use both. I never did for Kayda although she came close to needing it several times. Another reason this is good to know is that some families have had trouble finding a Dr who is willing to resuscitate a child with Hydranencephaly. So, sometimes you are in a situation where no one else will do it. This doesnt happen often, but it was always my main fear with Kayda.
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