Is the SCR used for the secondary uses service (SUS) for research data?
There are no plans to include SCR as a source feed for the Secondary Uses Service. This is because all content that is viewed through SCR is secondary and originates from another primary source which is a more appropriate source to target. The only primary data in SCR is patient entered data through HealthSpace; that data is inappropriate for SUS. If a patient opts out after the records have been uploaded what happens to their records? Once the records are on the system they may have been relied on for clinical judgement. If something goes wrong the patient might not be able to show that they were given poor advice, care or treatment and equally the professional might not be able to show that they did provide good advice, for example on the side effects of drugs. The record may also need to be preserved to make sense of subsequent treatment or care decisions. The record is archived and will not be available for routine clinical care. If a patient opts out after the records have been up
