Is porphyria research being conducted? How can I volunteer to participate in research?
Yes. For additional information about research being conducted and how to volunteer to participate, please contact either the Porphyrias Consortium Coordinator by email (porphyria.center@mssm.edu) or telephone (212-659-6779) or one of the site coordinators (see list of Porphyrias Consortium Members for locations and contact information). Acute Porphyrias Does surgery or pregnancy pose additional risks? Porphyria-related risks of surgery and pregnancy depends on the type of porphyria. Surgery may increase the risk of an attack of the acute porphyrias. This risk can be greatly reduced if certain precautions are taken, including the type of anesthesia used. The patient’s surgeon and anesthesiologist should consult a porphyria expert prior to hospitalization for surgery. Such consultation may also be helpful during pregnancy. Although attacks of acute porphyria can occur during pregnancy, the risk appears to be less than formally thought. Treatment of acute attacks during pregnancy is feas
