Is CCO permitted to collect, use, and disclose colorectal cancer screening information about Ontarians?
Cancer Care Ontario (CCO) is listed in the Regulation made under the Personal Health Information Protection Act, 2004 (PHIPA), s. 39(1)(c), as a prescribed registry in respect of its Colorectal Cancer Screening Registry. Prescribed registries are a specific class of organizations that are permitted under PHIPA to collect personal health information from health information custodians (without individuals consent) for the purposes of facilitating and improving health care. In turn, prescribed registries are permitted to use and disclose personal health information received from health information custodians (without consent) for the same purposes.