I’d like to have family members screened for their risk of developing diabetes, but I’m afraid our insurance company might find out about the results. Who will have access to our test results?
A. Maintaining your privacy is of the highest priority. Only a limited number of people involved in a particular study will have access to your information. All of these individuals receive careful training about the importance of privacy and the penalties for compromising your privacy are severe. In addition, your personal identity will not be revealed in any publication of study results. Furthermore, your research information does not become part of your medical record and is not shared with your insurance company. Details about how a particular study’s information is handled will be discussed during the informed consent process.
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