How will creating a DuchenneConnect profile affect me or my child?
This registry has been created specifically for individuals with Duchenne/Becker muscular dystrophy and/or carriers (or possible carriers) of Duchenne/Becker. Parents and guardians of persons with Duchenne/Becker muscular dystrophy may register for them. After registering and creating a profile, you will be contacted periodically with information about new research studies/clinical trials as they become available, as well as upcoming activities and resources. You will also be able to use DuchenneConnect to communicate with other members of the Duchenne/Becker community, in order to share information and get a better sense of how you or your child fit within the larger Duchenne/Becker Community.
