How will confidentiality be maintained?
Because of the sensitivity and the need to preserve the confidentiality of individuals participating as research subjects in genetic studies, standard protocols without personal identifiers will be used to maintain confidentiality. Only the family’s home CRC will have information on the personal identification of participants in this study. This study does not require that names be associated with samples in order to conduct the genetic analysis. However, in order for the results to be analyzed, the pedigree must be correct. Forms with personal identifiers will remain at the CRC in secured file cabinets and shall be accessible only to the CRC Study Coordinator or Project Director. To insure informed consent all research participants will be asked whether they understand the purpose of the study and why they are being asked to participate. All participants must voluntarily consent to participate in the study.
Because of the sensitivity and the need to preserve the confidentiality of individuals participating as research subjects in genetic studies, standard protocols without personal identifiers will be used to maintain confidentiality. Only the family’s home CRC will have information on the personal identification of participants in this study. This study does not require that names be associated with samples in order to conduct the genetic analysis. However, in order for the results to be analyzed, the pedigree must be correct. Forms with personal identifiers will remain at the CRC in secured file cabinets and shall be accessible only to the CRC Study Coordinator or Project Director. To insure informed consent all research participants will be asked whether they understand the purpose of the study and why they are being asked to participate. All participants must voluntarily consent to participate in the study. Top of page Study Newsletter To view this PDF you will need Adobe Acrobat Read
